The term eugenics was a new one for me, I had never heard of that before. I
learned that “Eugenics was an exceedingly popular topic in the 19th
century, when many hearing educators and philosophers decided that it was
better for the ‘future of the race’ if deaf people could be prevented from
reproducing more deaf people” (pg. 289). Reading this really frustrated me and I
could not get over how ignorant people were! That is awful! I was shocked to
read that Alexander Graham Bell, inventor of the telephone, even “discussed
various measures for preventing deaf people- whom he called ‘undesirable’- from
breeding. He proposed legislation to prohibit deaf people from marrying each
other, although admitting that this was an impractical expedient” (pg. 289). I couldn’t
believe this considering that his mother and wife were deaf. Reading about the
Nazi’s killing deaf Jews, and Christians was sad and terrible to read about as
well. I never realized how much they were discriminated.
“An estimated 90% of all deaf
people have hearing parents. And 90% of all deaf parents have hearing children”
(pg. 290). This just goes to show how wrong those who supported eugenics were.
I learned that “Hereditary deafness can be autosomal-dominant
or autosomal-recessive” (pg. 290). Deafness
is not just hereditary. “Early-deafened children may have gotten their deafness
from a bacterial or viral infection (e.g., spinal meningitis), high fever, or
accident. Those deafened by exposure to a virus, illness or accident would not
necessarily be carrying any deaf gene whatsoever-even if one or both parents are deaf” (pg.290). Many people don’t
think about all the other reasons one may become deaf, most people tend to
focus on the fact that it must be hereditary.
It is interesting that most hearing
children “grow up with a positive self-image, a more comfortable sense of
identity, than do many deaf children of hearing parents” (pg. 292). It
reiterates what was stated in Chapter 46, which is the importance of a parent’s
role in making the best decision for their deaf child.
Ch. 48:
I had never heard of a woman
falling during pregnancy being a cause of deafness. To me that sounded a little
strange and I found it hard to believe that there could be a correlation
between the two. The authors apparently agreed with me. They said, “It would
seem more logical for a baby injured before birth to be born with dislocated
limbs, not defective hearing” (pg. 296). I think in that case I would check to
see if it was hereditary instead of a physical incident. I thought that the
authors provided Shelley MacLean good advice when they suggested she visit a “genetic
counsel, who can test you, give you a more informed idea of the odds, and
provide reassurance” (pg. 297).
eugenics was also a new word for me as well! very interesting and different to learn about i suppose. i'm glad i'm not the only one who got frustrated with the ignorance of our past generations! people are nuts! no disability is an illness and it should be learned to live with! not prevented!
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